
Hope Blossoms: Prayer
My problem is trust. I can no longer be transferred from wheelchair to bed and bed to wheelchair in my usual way. With progressive motorneuron disease, adaptations are always occurring, … Continue Reading Hope Blossoms: Prayer
Wheelchair Reflections of Sacred Wonder
My problem is trust. I can no longer be transferred from wheelchair to bed and bed to wheelchair in my usual way. With progressive motorneuron disease, adaptations are always occurring, … Continue Reading Hope Blossoms: Prayer
Rooted. A nice way of saying “stuck.” This tree is stuck, it cannot move unless a force shall blow, or chop, it down dead. Never roaming to distant lands, or … Continue Reading Rooted
I should be dead, but I’m not. I should be a forty something-year-old in a nursing home, but I’m not. I should be miserable, but I’m not. Why? The reason … Continue Reading Real Men Stay
“I am poor and needy.”[i] Since I was a baby, and throughout my life, I have been slowly and relentlessly stripped of strength and abilities by progressive motorneuron disease. Crawling, … Continue Reading Stripped
The most abundant flowers in my mother’s garden has always been impatiens. I used to call these pretty plants “impatients.” This was when I was a child who was quite … Continue Reading Impatients
My mother tells me that I was conceived on the Fourth of July. She says that she remembers well the hot summer night on their back porch in the city, … Continue Reading What Does It Mean to Be Independent?
I should be dead, but I’m not. I should be a forty something-year-old in a nursing home, but I’m not. I should be miserable, but I’m not. Why? The reason … Continue Reading Real Men Stay